Patients living with a terminal illness, and those who care for them, are confronted with a profound and difficult situation. Questions about coping, living fruitful days, interacting with loved ones, and preparing for the inevitable will certainly arise. In this guide we'll help answer these questions by connecting you to advice and information from experts around the Web.
Although an illness may be terminal, there are active steps you can take toward monitoring your health and quality of life. Once diagnosed, educate yourself on your condition and on end-of-life issues. Knowledge is a huge asset, and there's much you can learn to prepare.
- Consumer health Web sites, like Mayo Clinic, InteliHealth, and HealthAtoZ, all have information on terminal illnesses, and should be some of the first stops in your search for information.
- The following sites are mostly for adults; however, if you have an older child who has been diagnosed with a terminal illness, you might judge the information on these sites as appropriate for him or her.
- For information on the specific disease afflicting you or a loved one, consult the corresponding findingDulcinea Guide for further information. If we don't have a guide covering your specific condition, the findingDulcinea Health Guide has information on researching health topics, and would be a great place to start.
has an interesting article on the importance of talking about end-of-life issues before any crisis occurs. Using real-life examples, various topics and ways of going about broaching the conversation are discussed. There's also a comprehensive glossary
with end-of-life terminology used by professionals.
Living Caring Working
is a Web site from Australia that aims to improve the quality of life for those with a terminal illness. Topics range from receiving a terminal diagnosis to discussing your needs. There's a PDF form that you can use to write down your emotional, physical, psychological, and cultural needs; the form may help you communicate with family and carers. Also included is advice on working while living with a terminal illness.
The BBC's Relationships portal
has extensive information for the person living with a terminal illness. Topics include the challenge of living with a terminal illness, the physical effects, coping styles, and much more.
, a comprehensive site devoted to those facing life-threatening illness and needing hospice care, provides this insightful article on living while you are dying. It touches on how to speak to your friends and family about your terminal illness, finding hope, and reaching out for support, among other topics.
provides this page on depression in patients with cancer, offering advice and insight that may be helpful for anyone battling a chronic or terminal disease. It reviews depression and anxiety, and how therapy may help in coping with this stage of life.
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