Learning About and Living with Parkinson's Disease
Michael J. Fox's highly publicized advocacy of Parkinson's research, along with high profile cases of the disease such as those of Muhammad Ali and former U.S. Attorney General Janet Reno, has brought Parkinson's disease to the forefront of the American consciousness. More than one million Americans are affected by this debilitating condition, and there's currently no cure. Use this guide to find information, both basic and advanced, on Parkinson's disease and the ongoing effort to cure it.
Most people associate Parkinson's disease with its most perceptible symptom, muscle tremors. This ... read more »
According to the National Institute of Neurological Disorders and Stroke, genetic mutations, ... read more »
Presently, there is no cure for Parkinson's disease, and its treatments seek only to alleviate its ... read more »
A number of organizations are working to accelerate the search for a cure to Parkinson's disease, ... read more »
For the sufferers of Parkinson's disease and their caregivers, support and encouragement from family and friends is invaluable. Yet meeting with others who have experience with the disease affords a unique type of support, one that can be given only by a person who understands what you or your loved one is going through. Use this section to connect with Parkinson's disease support communities.
- With respect to finding support, the Internet can be used in two distinct ways. First, it can be an efficient, effective resource for locating local support groups that offer a very personal, face-to-face experience, and are run by national foundations. Second, the Web can be used to find support of an online variety. Through discussion groups and blogs you can interact with others who understand what you are going through.
- Use caution when taking advice on message boards, as there is no guarantee of credibility.
The National Parkinson Foundation
has a database for finding support groups. On this page you'll find an explanation of why you or a loved one might benefit from contact with a support community. A link at the center of the page takes you to the database, where you can search for the closest of roughly 900 support groups nationwide.
group People Living With Parkinson's is an online support community based around an active message board
. Nonmembers can read posts, but to post your own message and join the group, you'll need a Yahoo account. Accounts are free, and can be obtained by using a link on the left side of the page.
has a Parkinson's disease discussion forum. Unlike the Yahoo groups forum, which features extremely active discussion, this forum is almost out of use. It is still valuable, however, because old posts can be browsed and read, and some contain useful information.
The Parkinson's Disease Society
is a British organization with 300 branches and groups throughout the United Kingdom. Use this page to locate your local chapter.
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