Long-Term Care: Nursing Homes, Assisted Living, and Home Health Services on the Web
As one grows older, the prospect of needing nursing home care or another form of living assistance becomes increasingly real. The National Clearinghouse for Long-Term Care Information estimates that more than
60 percent of people over the age of 65 will require long-term care services at some point in their lives. For those who are sick or have disabilities, more specialized living arrangements may be necessary. The Web has many resources for exploring long-term care options.
Care options for the sick or the elderly vary greatly and are largely need-based. For example, assisted living facilities generally serve elderly people who can maintain a reasonable degree of independence, but need help with daily tasks such as keeping track of their medications or preparing meals. On the other hand, nursing homes usually serve those who require continuous medical care. The following Web sites can help you learn about the basic types of care available to you or a loved one.
- It’s best to think of long-term care options as a progression that begins with a person remaining at home and living independently. The first stage is home care, in which a nurse comes to help with certain daily tasks, like doing laundry, and may perform routine tests, like checking blood pressure. The next step is assisted living, where a person leaves home and resides in an apartment or cottage on a center’s campus. There, someone will visit daily to help the resident bathe, clean, or make sure any medication has been taken properly. The center may provide meals or allow residents to prepare them in their kitchens. At the other end of the spectrum is a nursing home, in which a resident needs continuous medical care, or what’s also known as “skilled nursing care.”
- A person's ability to perform the activities of daily living is one of the major factors used to determine what type of assisted care a person requires. Those in assisted living can usually perform more of these tasks than a nursing home resident.
- People with Alzheimer’s disease or dementia have different assisted living and skilled nursing needs, and some facilities have separate units designed to care for them. The primary difference is the units are secure to prevent residents with dementia from wandering away, which is a very common behavior. For more information on Alzheimer’s, take a look at our findingDulcinea Alzheimer’s Disease Web Guide.
- Although it’s primarily older adults who reside in nursing homes, there are situations in which a younger person may need skilled nursing care. Even though information on the Web caters to older people, it could apply to younger people, too. Check with an individual facility to be sure.
To learn about nursing homes …
LongTermCareLiving.com
is a site run by the American Health Care Association and National Center for Assisted Living. This page has a short overview of the basic services that nursing homes provide. Use the “next” link at the end of the article to learn more about finding a facility and what to expect when visiting a nursing home.
MedlinePlus
has a directory where you’ll find an overview of nursing home facilities, nursing home news, and a reference shelf that discusses nursing home law and policy, and more. Nursing home care statistics and a
long-term care glossary are also available.
To learn about assisted living facilities …
Medem
is an online medical library that has a succinct definition of assisted living, along with examples of services provided.
To learn about Alzheimer's facilities …
The Alzheimer's Association
“CareFinder” helps you make arrangements for someone with Alzheimer's disease by showing you how to take care of financial and legal matters as soon as possible. Support resources and care options are also discussed. Once you've developed a good understanding of what's available, use the interactive “CareFinder” tool to locate and evaluate Alzheimer's care for you or your relative.
If you want to plan ahead …
The National Clearinghouse for Long-Term Care Information
is primarily a source for those who are planning for their future long-term care needs while they aren't "in a crunch." You'll learn the benefits of planning ahead for your care, and what arrangements you should make while you are still able. Predicting how much care a person could require years from now isn't easy, but the National Clearinghouse gives you some estimates to help you anticipate what you might need in terms of assistive services.
The first step in choosing a long-term care provider is to know what type of care someone requires (for example, skilled nursing or help with daily living). Once you answer that question, it's time to start researching individual facilities. But what should you look for? How do you know if one nursing home or assisted living facility is better than another? The Web has an array of checklists and expert advice that can help you find the living arrangement that is best suited to your needs and preferences.
- The Web is an invaluable resource for researching and comparing living and care options, but it can't convey the overall atmosphere of a facility and the attitude of staff and residents. You'll have to go experience that in person to see if you or your loved one would truly be happy there.
- Although this section includes sites discussing the potential dangers of long-term care facilities, you can't allow yourself to become overly fearful. Instead, be aware that problems do exist in some places, and use the Web to learn how to spot a problem facility before you or a loved one moves in.
- Some nursing homes, home health, and assisted living entities are members of the Better Business Bureau. Check here to see whether any complaints have been filed against a facility you are considering.
- Work with your doctor to determine what type of facility might best fit your needs.
For help selecting a care option …
LongTermCareLiving.com
offers how-to manuals about choosing, planning for, and paying for long-term care. You'll also learn how to write an "advance directive," which is broken down into living wills and a medical power of attorney. This allows you to dictate your wishes in the event you ever become unable to make decisions yourself.
For tips about choosing a nursing home …
Aging Parents and Elder Care
helps you determine what type of care you or your loved one can afford, whether short-term or long-term, and discusses the payment options available for nursing home care, along with factors you should consider when choosing a facility. A
checklist with an extensive list of questions you should ask when selecting a facility is also provided.
AARP The Magazine
provides 10 tips about selecting a nursing home, as recommended by Karen Westerberg Reyes, a volunteer long-term care ombudsman. Learn what questions to ask nursing home administrators, what parts of the facility you should personally inspect, and what you should expect
not to see in nursing homes, such as residents whose privacy or dignity is not respected.
AARP
also has a three-page checklist to print out and take to each nursing home you visit. Questions include staff- to- patient ratios, residents’ activities, and whether the food served looks good.
Medicare.gov
has an extensive searchable database of nursing homes that includes details on each facility, such as whether it participates in the Medicare and Medicaid programs, how long it has been certified, and its type of ownership (government, for-profit, non-profit). Search by city, county, state, or zip code to find a list of facilities near you. Click on two or more facilities and hit “Next Step” at the bottom of the page to learn how many residents each home has, and the total number of health and fire deficiencies. It seems this site can tell you almost everything you need to know about a particular nursing home.
The Centers for Medicare and Medicaid Services
has published a list of nursing homes in its Special Focus Facility initiative, which is designed to help centers fix serious problems. Nursing homes are often cited during the federal agency's frequent inspections. The facilities on this list, though, have a pattern of problems over a long time, more deficiencies than the average nursing home, or problems that are more serious.
For help choosing an assisted living facility …
LongTermCareLiving.com
has a check list of what to look for in assisted living centers, including a “Final Checklist Prior to Signing the Service Contract” near the bottom of the page.
Eldercare.gov
has an “Eldercare Locator,” which is a database of local senior organizations that can help you find assisted living facilities in your area.
Total Living Choices
has a searchable database of centers throughout the country. Search by your payment method (not every center takes Medicare or Medicaid) and whether an Alzheimer’s care center is needed. The results generally consist of a facility name, address and contact number. This site requires you to register before receiving results but it only asks for your email address, date of birth, and gender.
New LifeStyles Online
is a series of senior housing guides published around the country. Conduct a free search for assisted living centers by state or zip code. The results sometimes include a link to a facility site, if it’s available, or just a name, address and phone number. This site asks for but doesn’t require registration before viewing the results, and it contains narration for each page, which you might find helpful or annoying. If you find it the latter, mute your computer or use controls on the right side of the page.
To learn about the dangers of long-term care facilities …
The Centers for Disease Control and Prevention
Web site discusses the problem of residents falling in nursing homes, common causes of a fall, the severity of the injuries resulting from falls, and ways to prevent residents from becoming injured in a nursing home.
MemberoftheFamily.net
has compiled a directory of approximately 16,000 Medicare/Medicaid-certified nursing homes in the United States. The site features a “Nursing Home Watch List” to help you be aware of nursing homes cited for safety violations or complaints in the past. The "
Nursing Home Information & Registry" page provides government surveys of nursing homes, with color-coded categorization of the severity of violations and harm done to residents.
The Joint Commission
allows you to submit complaints online about Joint Commission-accredited health care organizations. Read this page carefully to see whether the Commission can handle your complaint (payment disputes and billing issues are not addressed here), and learn how the Commission will handle your complaint if it is accepted.
Costs are a major factor in determining the type of care you obtain for yourself and a loved one. If you have questions about the costs of nursing homes, assisted living facilities, or home care, use the sites below to find the answers you need.
- As you probably know, you'll have to be certain you understand the payment options available at a senior care facility. Some, for example, only accept private pay patients. You could save yourself time by asking what type of payment a facility accepts before you schedule a visit to the facility.
- If you’re planning to pay for care with your own money, another good question to ask a facility is what happens if your funds run out.
- Medicare and Medicaid are two programs that could help pay for long-term care, but only if you or your loved one meet certain criteria. We have included sites to help you learn more about both programs.
- Your Social Security benefits can also be used to help pay for your healthcare. People 65 and older may also qualify for Supplemental Security Income (SSI). The Social Security Web site explains how to determine whether you qualify for SSI benefits and explains how to apply for the program. The application process can take a long time.
- Nursing homes are the most expensive type of long-term care, followed by assisted living facilities, then home health. There are more options to help people stay in their homes longer. See our “Home Care” section to learn more.
For general payment information …
Nursing Home INFO
, the Web site of a financial and Internet marketing consulting firm specializing in the senior care industry, summarizes payment options available for seniors looking for a care facility. The section about private pay patients is worth reading, especially since the law requires most people to use up their personal savings before Medicaid coverage kicks in. The information about “Life Settlements” at the end of the section is an ad, not part of the article.
For Medicare and Medicaid information …
Medicare.gov
, the official Web site of the U.S. Department of Health and Human Services, explains a variety of things about nursing homes and long-term care, including the types of care Medicare will cover. A
PDF booklet about Medigap, which pays for aspects of health care that Medicare does not, is also available.
For insurance information …
BenefitsCheckUp
, an online service of the National Council on Aging, helps you search for and enroll in insurance programs on the federal, state, and local levels to obtain help paying for prescription drugs, health care, and other necessities. The site also has more than 250 forms and fact sheets if you already know in which program you’re interested.
Moving into a long-term care facility can be hard on the person leaving his home and the family members who are helping him. If either you or your loved one are having a hard time with the transition, use these sites to help adjust to the new living arrangements.
- The staff at the center you or your loved one is moving into may have tips and advice to help you both with the transition.
- Maintaining as much involvement as possible with your loved one can also help them stay happy and upbeat. If the nursing home or assisted living facility where your relative is staying maintains a Web site, check for any activity/event calendars that will help you know what's going on and schedule a visit to participate along with your loved one whenever possible.
If you’re moving into assisted living or a nursing home …
LongTermCareLiving.com
has a long guide to coping with your move. Topics addressed include “What To Bring To Your New Home,” and “Making the Emotional Transition.” There’s also advice and Dos and Don’ts for friends and family members. Another page debunks
myths about living in nursing homes, such as “I will not be able to make my own decisions,” and “Husbands and wives must live apart in a nursing facility.”
To learn how friends, family, and nursing home staff can help …
Nursing homes: how to bridge the transition from home
offers suggestions about making nursing home residents more comfortable. Though the author isn’t an expert in elder care, he or she has cared for elderly parents and offers helpful advice gained from personal experience. Learn how to keep your relative feeling involved in family events and find suggestions about making a nursing home or assisted living quarters feel more like home. Another article is provided about how a
nursing home resident may change over time.
LongTermCareLiving.com
has a guide that takes relatives through the first 30 days after a loved one has been admitted to long-term care.
Encyclopedia.com
has a
Nursing Homes magazine article that explains how nurses and other medical professionals can help the elderly become more comfortable with living in a nursing home. This article is about 10 years old but the advice still seems applicable today.
To access support resources for yourself …
Answers4Families.org
offers "When You are Faced with the Nursing Home Decision," which helps caregivers learn to accept their decision to place a relative into a nursing home, and discusses the emotions caregivers might experience when their responsibilities change. The article particularly emphasizes that care giving changes when someone enters a nursing home, but the responsibility is never completely gone.
If, after all your research, you've decided that moving yourself or a relative to a long-term care facility just isn't right for your family, you can also consider home care. In some ways, this choice is also a difficult one because although it might feel right to help a parent or relative remain at home, it can mean significant lifestyle changes for the caregiver. Use this section to learn about health and other services available for those who remain at home, plus resources for caregivers.
- Many Web sources agree that part of caring effectively for an elderly or sick person at home is remembering to care for yourself and finding additional support resources when you can. The Web sites in this section can help you learn how to care for someone at home, and connect you with professional support information and personal stories to help you cope with any stress associated with care giving.
- If you don’t live near your loved one and they don’t want to move, a home health care agency might be the best option. Many areas also have helper services in which a person cleans, prepares food or runs errands for someone who isn’t as mobile.
- Your local Area Agency on Aging (AAA) can provide resources to help your relative with activities of daily living, such as providing meals, caregiver support, transportation, and an assessment of an elderly person's need for services. To find an AAA in your area, call (800) 677-1116.
To learn about caring for the sick or elderly at home …
CareGuide@Home
contains advice about caring for an elderly or sick person at home. You'll learn how to determine the level of home care required for an individual, how to adapt your home to meet the needs of Alzheimer's and dementia patients, and how to hire a home care worker. For those who feel like home care has become too difficult, the site also offers help with making the decision to obtain residential care for someone. Though the site is run by a home health care agency, the advice doesn’t seem to push a particular service or product.
CarePathways.com
is primarily devoted to those caring for elderly individuals at home. The site is maintained by registered nurses who provide care to senior citizens and their families.
Helpful hints and resources about meeting the demands of home care, finding and hiring professional caregivers, obtaining home care supplies, and convincing parents they should obtain home help are discussed here.
USA Today
offers statistics about the number of people living in nursing homes, noting that the nursing home population is actually declining. According to this article, the number of seniors moving to assisted living facilities or receiving care from their children is on the rise. This article also links to a series of stories about role reversal, or children caring for their parents.
If you need a break …
Helpguide
explains the purpose of adult day care, sometimes called respite care. It’s exactly what it sounds like: the person who needs care is supervised for a few hours while they do activities and socialize. Meanwhile the caregiver receives a break. In other situations, a person is hired to watch the relative at home for a few hours, or even overnight. If you're wondering how to choose a facility, this article can help you review your options. A link is also provided to an
adult day care center locator.
For personal stories and support resources …
USA Today
presents a series of stories about family caregivers, the emotional toll of caring for the elderly at home, managing work and care giving schedules, and preparing for the financial costs of home care. Scroll down to the sections titled "Get Answers to your Elder Care Questions," "How Families Cope," and the "Week-Long Series" for personal and professional advice.
I Care For You
is a collection of stories about family caregivers and their efforts to care for loved ones. Stories about parents caring for sick children, children caring for parents, and spouses helping one another are included here. This site lends support and a feeling that although your personal situation may indeed be difficult, you don't have to cope by yourself.
The Washington Post
reports that a few employers are reaching out to workers caring for elderly parents by providing both child day care and adult day care services. Workers worried about elderly relatives are less productive on the job, the article notes. Helping an employee by caring for their elderly family members can increase job performance.
AARP The Magazine
has an online guide for care givers. Articles include “Caring for the Caregiver,” and worksheets to help children track their parents’ important documents, monthly income and expenses. There are also links to message boards where caregivers can discuss the issues they face. Registration is required to post to the boards but it’s free.
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