Learning About and Living with Diabetes
Diabetes is diagnosed in Americans with increasing frequency. It is a condition requiring careful management and awareness by both the patient and his family. Fortunately, the Internet has made this task easier. Whether you're researching adult or juvenile diabetes, or if you seek help for yourself or for a loved one, the Web offers many resources for understanding diabetes and its treatments.
Click here to read this guide in Spanish.
Type 1 diabetes is commonly called juvenile diabetes, and type two is called adult onset diabetes, though the differences are more complex than an age distinction. This section's sites explain how the the types of diabetes affect different groups.
- Diabetes associations and research foundations, universities, and government sites are the best places to go for diabetes information. Consumer health sites, such as eMedicineHealth, are also valuable resources.
- The experts at HealthCentral.com have created an article listing what they believe are the top 10 diabetes sites on the Web. These are useful resources for diabetes information.
For general diabetes information ...
The National Diabetes Information Clearinghouse
explains what diabetes is by organizing the topic in categories: pre-diabetes, type 1 and type 2, newly diagnosed, children and diabetes, and gestational diabetes. There are links to easy-to-read publications available in both English and Spanish.
The FDA
offers a page about diabetes with several links to the latest news, medications, and the various tools used to keep you healthy. The FDA regulates most of the food and medical products used to treat diabetes, making this site an excellent source for the most trusted and up-to-date information.
eMedicineHealth
has a diabetes section that is comprehensive and well organized. Topic areas are listed as quick links at the top of the page so you can find exactly what you're looking for, from causes and symptoms to medications and support groups.
For demographic group-specific sites ...
The American College of Physicians
provides this 48-page PDF document that discusses diabetes in the African American community. The site also publishes a document about diabetes in the Hispanic American community, available in
English and in
Spanish.
Mayo Clinic
has an article that discusses the double whammy of diabetes and menopause. The author explains how menopause can affect the signs and symptoms of diabetes, and offers ways to cope with both.
The National Institute on Aging
provides this page on diabetes in older people. It describes what diabetes is, the health issues involved, and how testing is performed. The Institute suggests ways to manage the disease and offers other tips for living a healthy life with diabetes, like getting frequent eye, kidney, and foot exams.
Researchers haven't pinpointed the cause of type 1 diabetes, and so are unsure what risk factors lead to it. Efforts have been more successful in the case of type 2 diabetes and gestational diabetes. The sites in this section discuss the associated risks and offer advice on how to reduce yours.
- A large part of type 2 diabetes prevention is diet and exercise. If you visit sites that promote a good healthy lifestyle, with exercise and a healthy diet, you are already on your way to diabetes prevention. For more information on exercise, visit the findingDulcinea Fitness Web Guide.
- Taking questionnaires offered by many diabetes sites is a good way to find out if you or someone you love is at risk of developing the disease. However, a conversation with your physician has no substitute.
- Gestational diabetes is a type of diabetes brought on by pregnancy. In this section you'll find a selection of pages with information specific to gestational diabetes.
For risk information ...
The American Diabetes Association
provides "Diabetes Personal Health Decisions," a questionnaire that helps figure out your risk for developing diabetes. You can save your profile and refer to it at a later date.
Siteman Cancer Center
is part of Barnes Jewish Hospital, and offers a "Your Diabetes Risk" tool, which was originally developed by the Harvard Center for Cancer Prevention. This multi-page questionnaire asks about family history, eating habits, smoking and physical activity.
The University of Maryland Medical System
offers this type 2 diabetes risk calculator. To begin, enter your age, weight, height, gender, and body frame, then answer a few questions on your health history. You'll be brought to a page that states your risk of developing type 2 diabetes.
For gestational diabetes ...
Mayo Clinic
has a comprehensive "Gestational diabetes" section with the signs and symptoms of the disease, causes, complications, treatment options, and other topics.
The March of Dimes
addresses the complications that can arise during pregnancy, and here focuses on gestational diabetes. The risk factors that contribute to gestational diabetes are covered, along with the sometimes subtle symptoms to look out for.
When you're pregnant, most doctors check for gestational diabetes as a part of routine care. Type 1 and type 2 diabetes, however, aren't tested for unless doctors have a reason to believe the baby is at risk. As a mature diabetic, it's essential to test your blood regularly to monitor your diabetes. These two types of diagnostic testing are explained more fully in this section of the guide.
- Web quizzes and lists of symptoms are a good way to start talking to your doctor about diabetes concerns. Nothing online can substitute a consultation with your doctor.
- If your doctor diagnoses you with diabetes, ask if she has a particular diabetes Web site that she recommends to her patients.
For diagnosis ...
WebMD
has a diabetes testing page which reviews the blood tests that you may have if your doctor suspects that you have diabetes.
For monitoring diabetes ...
The American Academy of Family Physicians
provides this page on why people with diabetes should test their blood, how, and how often. You are also given an example of a chart you can use to keep track of your test results.
The FDA
has a page on glucose monitoring devices, what they are, what different types do, and how to use them. It reviews factors that can affect the results, making sure your unit is working correctly, and new technology.
Diabetes, depending on its severity, can be managed through diet and exercise, medication, insulin or a combination of two or more of those treatments. These sites explain the available treatments in more detail.
- Everyone's diabetes is different. If you read about a new treatment that interests you, discuss it with your doctor, but be aware it may not be appropriate for your individual case.
- When researching diabetes medication, take note of who sponsors the sites you're visiting. If it's a pharmaceutical company, you can be sure there is a bias in favor of their products.
For medication ...
MedicineNet.com
has a diabetes treatment section that reviews the many types of medications, making a distinction between oral medications and injections.
eMedicineHealth
has a diabetes treatment section that reviews the different medications that could be prescribed for type 2 diabetes.
For insulin ...
Insulin Pumpers
is a Web site dedicated to people with diabetes who use an insulin pump to regulate their blood glucose. Try to ignore the horrible design, silly animations and distracting advertisements: this site does provide a lot of helpful information on topics such as traveling with your insulin supplies, guidelines for children who use pumps, and FAQs about pumps.
For tracking and managing diabetes ...
Diabetes Tracker
is a Web site that allows you to keep track of your glucose levels and monitor them on a graph. You have to register with a username, but you don't have to supply an e-mail address.
The American College of Physicians
has a "Diabetes Portal" with several links to help you learn how to manage your diabetes. Use this
worksheet to keep track of changes you have made in your eating habits or physical activity, and the results they have had on your diabetes. This is a good way to monitor your progress. A wallet-sized
medical record is also a good idea, in case of an emergency. Fill in the information (your doctor's name, allergies, prescription drugs you're taking) and carry it with you at all times.
Mayo Clinic
has a section specifically on managing your diabetes if you're sick. this is an issue that many people with diabetes struggle with, as illness can send your blood sugar levels out of control.
For clinical trials ...
ClinicalTrials.gov
is a clearinghouse operated by the U.S. National Institutes of Health. It provides a list of research clinical trials currently underway to test experimental treatments for diabetes. To learn more about clinical trials, speak to your doctor, and read the
U.S. Food and Drug Administration's guide.
Because diabetes affects the sugar in your blood, and your blood constantly travels to your organs, this condition eventually ends up affecting them and systems in your body. So in addition to monitoring your blood sugar, people with diabetes must carefully manage their general health. In this section, you'll find sites discussing the complications that diabetics can encounter, and ways to attempt to prevent them.
- Many of the complications resulting from diabetes are the result of youthful behavior but won't manifest until later in life. So it's important to monitor yourself early, in preparation for the future.
- Diabetes sites offer plentiful information on preventing complications; it's good to verify information across multiple sites.
For complications ...
The Joslin Diabetes Center
has a diabetes complications section that offers many links to information on the various health issues that can affect people with diabetes, including eye health and kidney disease.
The National Diabetes Information Clearinghouse
has a comprehensive section on diabetes complications. It covers conditions such as stroke, erectile dysfunction and kidney failure. There are also several links to information on keeping diabetes under control and prevention complications.
For tips to avoid complications ...
Mayo Clinic
says managing diabetes is a lifelong responsibility. This page offers 10 ways you can initiative to avoid complications.
People with chronic illnesses can have difficulty finding doctors and support, particularly when traveling or moving. It can be stressful to uproot yourself and lose the support community with which you've grown to be familiar and comfortable. These sites can help you find medical help and social support for you or your child.
- Finding support is one of the most important aspects of dealing with a chronic disease. If you can't find a doctor, contact your local hospital or health authority to see if they can provide some help.
- Online support can be a life saver for many people. By having sites, forums, and message boards available 24 hours a day, people can get information from others who know what it's like to be affected by diabetes.
- Many associations offer newsletters to keep readers abreast of new developments on the site or with diabetes. If you're interested in subscribing to a newsletter, you can generally find the link displayed prominently on the homepage or in the "About Us" section.
For help finding a doctor ...
For message boards ...
DearJanis.com
has a moderated forum encourages people with diabetes, or parents of children with diabetes, to communicate with each other, to ask questions, and to help each other by sharing experiences.
The American Diabetes Association
has message boards that allow you to speak with other diabetics or parents of children with diabetes. There are sections for those who are newly diagnosed, for parents, for teens and children, and sections on diabetes news, nutrition, and exercising. There is also a forum available in Spanish.
For newsletters ...
The Juvenile Diabetes Research Foundation International
offers three newsletters to which you can subscribe, depending on your interest. The Life with Diabetes E-Newsletter is for newly diagnosed families and covers important tips. The Research Frontline newsletter covers the latest diabetes research findings, and the Emerging Technologies E-Newsletter covers the latest information on the use of technology in diabetes. This site also features an online
support team that is staffed by volunteers who are available to answer your questions.
The American Diabetes Association
has a number of newletters that you can subscribe to, including a weekly roundup of diabetes news, a parents' newsletter, and family health.
Kids and teens can be stubborn when it comes to taking the advice of parents. Directing your kids to trusted Web sites that cater their tone and content to a younger audience can help make children and teens feel empowered to take responsibility for their own healthcare. This section provides you with some of those sites.
- When looking for child-friendly information on the Web, check for age appropriateness. A teen will likely not pay attention to a site aimed toward younger children and a younger child may not understand a site aimed toward teens.
- Kids don't like to be different, especially when they're teens. By finding kid-friendly Web sites, they can find other children or teens their age who can understand what they are experiencing.
- A large part of dealing with diabetes is eating right. Since eating is such a social aspect of our lives, particularly with teens, it's important that they learn how to eat well. In the "Eating Well with Diabetes" section below, you can find several links to diabetic recipes and how to eat well within a diabetic diet.
For children and diabetes ...
KidsHealth
has a "Diabetes Center" especially for kids that thoroughly explains diabetes in child-friendly language. The diabetes "movie" uses simple graphics to illustrate how insulin works and what happens in type 1 and type 2 diabetes.
The Eagle's Nest
is an educational program for children with diabetes sponsored by several government agencies, including the National Center for Chronic Disease Prevention and Health Promotion. The site is full of links for child-friendly information and activities for children to learn about diabetes. Free
coloring books are also available for download.
Think Like a Pancreas
is an interactive Flash animation catering to adolescents. A talking pancreas with a French accent serves as your tour guide as you explore blood sugar levels, lifestyle issues, and troubleshooting suggestions.
For living with diabetes ...
The American Diabetes Association
has a section for both parents and children. This section provides information on diabetes care, living with diabetes, information on diabetes and the law, and more. There are teen and youth sections where kids can go to learn about diabetes in age-friendly language, and an area on "
Special Occasions" that offers tips on how to cope with these usually sugar-filled events.
The National Diabetes Education Program
is part of the U.S. Department of Health and Human Services. This section of the site answers some questions that parents may have about their children with diabetes, such as meeting treatment goals and how this affects the rest of the family.
The Canadian Diabetes Association
provides this PDF document entitled "Kids With Diabetes in Your Care" for anyone who works with children: daycare workers, teachers, coaches, and even the parents and family members of the children. It's a resource kit for anyone who wants to know about diabetes and includes a quiz for you to test your own knowledge.
For online support ...
Diabetes Teen Talk
is a site that offers "friendship, education and inspiration" to teens with diabetes. There is a message board where teens can talk to other teens, a "
Life" section where they can read about other teens with diabetes, and an "
Interviews" section that features chats with diabetes experts and celebrities who have diabetes.
You don't need to put aside good food and good times if you have diabetes, even though there are foods and drinks that you have to avoid or limit. The sites in this section offer nutrition, information and recipe ideas that are good for everyone, not just those with diabetes.
- Many people with diabetes start their own sites because they know how hard it can be to find interesting and tasty meals. It can be fun to check out many of these recipes and see for yourself. If you want to verify if the recipes are good for you, ask your diabetes team or dietician to have a look.
- Some sites offer good information about ingredients and their nutritional value along with the recipes. You can transfer this new knowledge to other sites and recipes, too, in order to ensure that you are following your diet closely.
For meal planning help ...
The American Diabetes Association
has a "Nutrition and Recipes" section with many links that may help you maneuver around what can seem like a food minefield. From sections on how to read food labels to making easy choices, the information is plentiful. There is also a link for dining out.
The Diabetes Mall
features a "Diabetes Cyber Kitchen" with Judith Jones Ambrosini, a chef and author with type 1 diabetes. Scroll through the many meal plans and recipes to get your mouth watering. Find Judith's story about her life with diabetes at the bottom of the page.
For recipes ...
RecipeSource
has a "Diabetes Recipes" section with a large selection of recipes to please the palate. There are recipes for everything from stews to stuffing to muffins. Search the subcategories at the top of the page, or browse the alphabetical list.
For kids' meals ...
KidsHealth
has a page for parents to help with meal planning for their kids with diabetes. This site also has kid-friendly
recipes.
Research findings are often reported in mainstream media but they can be sensationalized. If you want to learn about the research as it's published, you're best off reading a research journal or visiting a site run by a research foundation.
- Because journals and professional sites generally cater to an audience with a background in biology and medicine, you're likely to find the writing to be dense and difficult to wade through. One option is to keep a medical dictionary open while reading to help you define unfamiliar terms. The findingDulcinea Health Web Guide lists the best dictionaries.
For research ...
The Canadian Journal of Diabetes
is a peer-reviewed professional journal that publishes articles about diabetes and diabetes research quarterly. Full articles from archived issues are free. Visit the "
Clinical Trials" area to learn about those taking place in Canada.
Diabetes
is a monthly journal published by the American Diabetes Association for physicians and researchers who work in the Diabetes field. You musht have a subscription to read the full articles, but accessing the abstracts is free.
For news ...
The Diabetes Research Institute
provides links to the latest research news, including emerging technologies and stem cell research, information on clinical trials and diabetes news in the mainstream media.
Diabetes Health Magazine
has "Newsrooms" for updated news tailored for beginners, kids, professionals, type 1 and type 2. Also check "Diabetes Health TV" for shows from the American Association of Diabetes Educators conference.
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