Hairy Cell Leukemia
Hairy cell leukemia is the most uncommon type of leukemia. Many people view it as a subset of Chronic Lymphocytic Leukemia. According to Mayo Clinic, approximately 600 to 800 new cases are diagnosed each year. Middle-aged men are the most likely to be diagnosed with it, and it is rarely if ever seen in children.
Expand All Guide SectionsWhat is Hairy Cell Leukemia?
Hairy cell leukemia is a slow-growing disease in which the bone marrow makes too many ... read more »
Hairy Cell Leukemia Diagnosis and Treatment
Doctors use the same types of methods to diagnose and treat hairy cell leukemia as other types of ... read more »
Hairy Cell Leukemia Support
Though hairy cell leukemia is an uncommon disease, there are a few forums and blogs on the Web where you can meet others who are going through the same experience.
Dulcinea's Insight
- There aren’t many forums specifically for hairy cell leukemia, but the sites in this section have sections devoted to leukemia generally. To find more support sites, see the “Support Groups for Leukemia Patients” in the findingDulcinea Leukemia Web Guide.
Dulcinea's Picks
For support groups…
The Leukemia and Lymphoma Society
has online support groups led by professionals, but you must register first, a procedure that is more complicated than other groups. After completing an online form, someone from the society will call you.
For blogs written by patients with HCL (note, these are not medical professionals)…
Atypical Case of a Rare Disease
is a blog about a man’s experience with HCL, including his experience with complementary medicine. Check out the blog archives for his earliest entries.
John’s Journal
is about a man who has hairy cell leukemia. The blog hasn’t been updated in a few months, but it describes some of the treatments he’s undergone.
For a forum …
Rob’s User Friendly HCL site
is a place where people can chat about having HCL and their treatments. It’s not the best designed site on the Web, but the chat and message boards are active. You must register to chat, but it’s free.
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