Bipolar Disorder: A Web of Information, Treatment, and Support
Once known as manic-depressive illness and still sometimes called by that name,
bipolar disorder affects an estimated 5.7 million adults. Teens and children are being diagnosed with bipolar disorder more frequently, too. There is no cure for the disorder, but it can be managed with a combination of medicine and therapy.
Bipolar disorder is marked by extreme changes in mood. People with bipolar disorder experience periods during which they don’t need to sleep, they feel talkative and energetic, and their minds race. After a few weeks that episode may subside, and in a few months they may slide into a deep depression that also lasts for days or weeks. Behaviors in either extreme may have disastrous consequences on relationships, finances, and careers.
- It helps to think of bipolar disorder in terms of a straight line, with mania at one end and depression at the other. Instead of hovering around the middle of that line, like most people, people with bipolar disorder have episodes that swing from one end to the other.
- Bipolar disorder is often abbreviated as BP or BD online.
For an introduction …
The Bipolar Disorder Glossary
is part of GlaxoSmithKline’s Web site for its bipolar medication Lamictal, but the page is free of marketing jargon and offers a concise, useful index of terms.
Psych Central
is a site created and run by psychologists with a thorough introduction to the disorder.
Mental Health America
used to be the National Mental Health Association. Besides a general overview of bipolar disorder available in English and in Spanish, the site has information geared specifically toward African Americans. Though bipolar disorder is no more prevalent in African Americans than in other groups, MHA says they are less likely to be diagnosed.
For children …
TeensHealth
has a page dedicated to bipolar disorder that includes personal stories from teens who have been diagnosed.
Neuroscience for Kids
is a University of Washington project that has a child-friendly explanation of bipolar disorder. It includes pictures of the brain and neurons, along with links defining technical terms, such as “glial cells.”
The exact cause of bipolar disorder is unknown, but researchers theorize that a mix of family history and environmental factors are involved. The chance of a person having bipolar disorder rises if a parent or sibling also has it, but it is not contagious. Researchers have found that major life events, such as a loved one’s death or starting college, can trigger manic or depressive episodes.
- Bipolar disorder’s symptoms in adults are often confused with depression. In children and teens, it can be confused with attention deficit hyperactivity disorder (ADHD) or other conditions. The sites recommended below can give you an idea of what to look for and what to bring to your doctor’s attention.
For signs and symptoms …
The National Institute of Mental Health
has a bipolar disorder site that lists manic and depressive episode symptoms and includes the length of time these episodes must persist to be considered symptoms of the disorder.
Psych Central
has a brief article outlining some of bipolar disorder’s major symptoms and how those symptoms differ from the normal ups and downs people experience.
The Juvenile Bipolar Research Foundation
offers a free questionnaire to help determine whether a child might be suffering from bipolar disorder. Accessing the 65-question multiple-choice questionnaire is free; having the foundation score it is not. The alternative is to print out the completed questionnaire and take it to a medical or mental health professional.
For causes and diagnosis …
Psych Central
has an easy-to-read discussion of the genetic, environmental, and neurochemical factors involved in bipolar disorder. It also includes a description of medication-triggered mania.
eMedicine
has a diagnosis page that is more in-depth but also more technical. It offers an almost step-by-step walk-through of the process of diagnosing someone with bipolar disorder, from ruling out other medical problems to gathering information from friends and family. The page also addresses causes, citing specific studies.
Medication is the starting point for any bipolar treatment. Lithium is a medication that has been around for years and has been shown, in many cases, to be effective in flattening out the “peaks” and “valleys” of manic and depressive episodes, but there are other prescription drugs available. Other treatment methods include counseling (in combination with medication) and electroconvulsive therapy (ECT).
- Many pharmaceutical companies have programs to help people pay for prescription drugs. If you need such a program, visit the Partnership for Prescription Assistance, a nonprofit organization that works with dozens of pharmaceutical companies, to see if you qualify.
For treatment …
Psych Central
discusses the three approaches to treating bipolar disorder: acute, continuation, and maintenance. Learn what kind of practitioner treats bipolar disorder, the types of medications involved, and what approaches don’t work.
HealthyPlace.com
bleakly outlines the serious implications of leaving bipolar disorder untreated. Some behaviors associated with manic phases include excessive spending and promiscuity, which can wreak havoc on a person’s finances and relationships. People with bipolar disorder also have higher rates of substance abuse and suicide.
For questions about medication …
Mental Health America
(formerly the National Mental Health Association) has a bipolar medication guide that deals with topics such as questions for your doctor, medications for mental illness, and medication for women with bipolar disorder who become pregnant. One section addresses how to
find help and pay for medication, including a page with advice if your health insurance denies payment for care. Information is also available in Spanish.
For treating children …
The Child and Adolescent Bipolar Foundation
describes the importance of diagnosing children early and offers advice from other parents on how to find the right doctor. The site also explains parents’ roles in treating bipolar disorder and has a discussion of medication and other treatments. Scroll down to “Diagnosing Bipolar Disorder in Children.”
For clinical trials …
ClinicalTrials.gov
is a clearinghouse operated by the U.S. National Institutes of Health. This site provides a list of research clinical trials currently underway to test experimental treatments for bipolar disorder. To learn more about clinical trials, speak to your doctor and read the
U.S. Food and Drug Administration’s guide.
Bipolar disorder is a difficult condition to manage. According to Mental Health America, those with bipolar disorder have higher rates of substance abuse, and an estimated one in five people with the disorder commit suicide. But the Web is full of useful tips to help you or your loved one control bipolar disorder, rather than the other way around.
- Many of the sites we recommend in this section have tips and tools to help you recognize what triggers an episode and how to determine when an episode is coming on so you can take the necessary steps to manage it.
- According to researchers, sleep helps keeps episodes of mania and depression at bay. Keeping a regular schedule of waking and going to sleep at the same times each day can be a big help in managing bipolar disorder.
For help managing your disorder…
The Depression and Bipolar Support Alliance
has a “Wellness Toolbox” with a “Trigger Tracker,” a “‘Staying healthy at work’ worksheet,” “Wellness strategies,” and more. Click on “Empower Yourself” on the left side of the page to find the toolbox. Find more information by visiting the “Just Diagnosed?” button along the top of the page. The alliance also has a section in which you can become an advocate at a local, state, or federal level, under the “Get Involved” link on the homepage. Stay informed by registering for the organization’s free newsletters.
MSN
has a Health & Fitness site with a section on bipolar disorder that features interesting articles about living with the condition. Look for topics like “Managing a Manic Episode” and “Holding Down a Job—With Bipolar” in an advice column format.
The BBC
has an overview of bipolar disorder that includes
resources for those located in the United Kingdom. The “
Self-management” section offers information helpful to everyone with the disorder.
For kids with bipolar disorder …
The Depression and Bipolar Support Alliance
published a booklet called “The Storm in my Brain” to help children understand what bipolar disorder is and how it affects them. The booklet is illustrated by children who have bipolar disorder or depression, and it has tips for parents and teachers at the end. Note: the file is very large (1.31 MB).
For families …
NAMI
was mentioned above for its resources for people with bipolar disorder. The association also sponsors a free 12-week course to help families cope with someone who is mentally ill. Topics covered include strategies for handling crises and for helping loved ones take their medication regularly. Search the
course schedule by state.
For help coping with bipolar children and adolescents …
MSN Health & Fitness
has a section on bipolar disorder in teens and children ithat ncludes links to articles such as “What Happens,” “What Increases Your Risk,” and “When To Call a Doctor.”
The Juvenile Bipolar Research Foundation
has a long article discussing the educational issues for a child with bipolar disorder. Topics include preparing for an individual education plan meeting; considering options like therapeutic day schools and residential treatment centers; and making the decision to home-school.
Though the number of people with bipolar disorder may seem small, there is a large online community of people who want to support each other. Use forums to talk about all sorts of topics related to living with bipolar disorder, such as being newly diagnosed or available medications. Many forums also have special areas devoted to people who have a loved one with bipolar disorder.
- Many forums are run by people who have the disorder themselves, known in mental health jargon as “consumers.” These sites in particular encourage people to be kind to one another.
- Not everyone you encounter in these forums has the best intentions. Be careful not to give out too much personal information on forums or in chats.
For support …
Mental Earth Community
is run by people with bipolar and other disorders, with help from a licensed psychologist. You must register (it’s free) before entering the forums or live chats.
Everyday Health
has a forum, “
Living With Bipolar Disorder,” that requires no registration. People there post about such varied topics as medication and sharing their feelings on a tough day. Responders are generally quite supportive, and ads are kept to a minimum.
Bipolarhome.org
was created by a man with bipolar disorder. The forums are largely free of ads and have civil, sympathetic people talking about coping with significant others who have the disorder, drug interactions, and working while dealing with bipolar disorder.
For parents …
The Child and Adolescent Bipolar Foundation
has a wealth of information for parents whose children have been diagnosed with bipolar disorder. There’s a chat room and an online support group parents can join, but it requires a minimum donation of $40 per year. With that donation, parents also receive an e-bulletin.
There is no shortage of research being done on bipolar disorder, including genetic studies and brain imaging exams. The sites in this section can help you keep abreast of new developments or therapies by furnishing news articles about the disorder, along with published studies on the latest research.
- If you’ve been diagnosed with bipolar disorder, discuss findings that interest you with your doctor. Sometimes “translation,” or the moving of lab research into common medical practice, can take years, but communication may help decrease that lag.
- Although there are no journals dedicated to bipolar disorder, research about it shows up in journals on psychiatry, psychology, and medicine. Most journals can be accessed only by buying expensive subscriptions, but there are some free resources. Stanford University’s Pediatric Bipolar Disorders Program, described further below, publishes the program’s research online without charging a subscription fee.
For news on bipolar disorder …
Medscape
has a good section of bipolar-related headlines from the news service Reuters, despite the site’s financial support from GlaxoSmithKline, maker of the bipolar medication Lamictal. You must register (it’s free) to access the content.
Pendulum
has a frequently updated collection of news related to bipolar disorder. Articles are summarized from academic organizations’ press releases or news stories, often with a link to the original source.
To read research on bipolar disorder …
The National Institute of Mental Health
has conducted a massive, long-term study involving thousands of people with bipolar disorder. NIMH designed STEP-BD, or Systematic Treatment Enhancement Program for Bipolar Disorder, to determine the best combination of treatments to prevent manic and depressive episodes. Read more about the results here.
NARSAD
(formerly known as the National Alliance for Research on Schizophrenia and Depression) has a catalog of the bipolar research it is funding. Click on each investigator’s name for information on the project.
To read research on juvenile bipolar disorder …
The Stanford Pediatric Bipolar Disorders Program
has journal articles about the research conducted there. Scroll down the page to see the articles, which can be accessed for free. Near the bottom of the page are links to press releases and media articles about bipolar disorder in children.
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