Alzheimer's Disease: More than Just Memory Loss
If you or someone close to you has Alzheimer's disease, chances are you're asking questions about the condition faster than your doctor can answer them. The Internet gives you access to information, outside of office hours, that enables you to find quick answers to urgent questions, and also helps you ask doctors, nurses, or other healthcare professionals the right questions. For a Spanish-language version of the Guide, click here
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With the right information and support, you can learn how to live with Alzheimer's and prepare for the future. In this section, you'll find newsletters you can read to stay informed, and message boards and forums you can join to connect with other patients or caregivers. A combination of knowledge and community can help to provide the much-needed support one needs to face the life changes brought on by Alzheimer's.
- Take advantage of the newsletters and message boards that many of the Alzheimer's associations offer. They're a good way for you to learn through others' experiences, to benefit from the questions others ask, and even post some of your own.
- In addition to reading information on Alzheimer's Association sites, explore sites of research centers at colleges and universities. Many post press releases that can give you greater understanding of how the disease may affect you.
- Your doctor is the one who knows best what's going on with your body and your illness. Doing independent research will enhance the value of your conversations with her, but she's still the one to look to for definitive answers.
The Alzheimer's Association
has information for people who have been diagnosed with Alzheimer's, including how the disease will affect you as it progresses, tips on how to cope and how to maintain your independence, and ideas on how to get involved in the fight against the disease. In the "Message Boards" section, register for full access to the community or just browse for read-only access. There's also a section where you can ask questions from a "Care Consultant."
The Alzheimer Society of Canada
has a section called "I Have Alzheimer's Disease" with information on the disease itself, how to cope, and an audio version of "Shared Experiences: Suggestions for those with Alzheimer Disease." The "Have Your Say" pages are a place for those with Alzheimer's to share their thoughts and feelings on living with the disease while the "Creative Space" area offers an area where you can express yourself in writing ("The Writing Room") and with art ("The Art Gallery").
The National Institute on Aging
"Publications" page offers three publications for people who have been diagnosed with Alzheimer's disease (scroll down to the section titled: "Especially for the Patient"): Just For You, a newsletter called Perspectives, and Speaking Our Minds: Personal Reflections From Individuals With Alzheimer's Disease.
offers many resources to help you cope with Alzheimer's disease. The "Learn More" section is particularly useful for those dealing with the disease, featuring topics like "Coping" and "Disease Management." When you select a topic, you'll get a list of relevant sites that the MedlinePlus staff has review; some of these Web sites have information available in languages other than English.
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