Learning About and Living With HIV/AIDS
Since the world first became acquainted with AIDS more than 20 years ago, the research and literature available about the subject has grown in leaps and bounds. Just try typing “AIDS” into any search engine and you’ll be bombarded with thousands upon thousands of hits. By asking more specific questions about the subject, you can start using the Web to learn how to successfully live with the disease, talk to someone about HIV/AIDS, or get involved in activism organizations.
If you or a friend or family member has recently been diagnosed with HIV/AIDS, you probably have ... read more »
Now that you know you are HIV positive, your medical care will become one of the most important aspects of your life. You’ll need to choose the right doctor to fit your needs, and begin to familiarize yourself with the medications that will help keep you healthy. All of this might seem intimidating, but there are Web sites that will give you suggestions to start managing your health.
- If you were recently diagnosed with HIV and have general questions about what HIV is or about risks you might face, review the Web sites recommended in the “HIV and AIDS: Causes, Prevention and Treatment” section of this guide.
- Many of the sites recommended in the previous section have “Just Diagnosed” or “Recently Diagnosed” areas that can get you started in answering, “Where do I go from here?” The sites suggested below will help you answer some of the other, more specific questions you may have.
- The findingDulcinea Health Web Guide recommends sites that will help you find a doctor and learn what kinds of questions to ask to get the most out of your visits.
For advice about choosing a healthcare provider and starting HIV management …
has a good discussion of what beginning steps to take if you’ve tested positive. The section titled “You’re Positive, Now What?” helps you choose a healthcare provider. Make sure to look at the HIV questionnaire in that section; it might be useful to you during a visit to the doctor.
Gilead Sciences, Inc.
has important resources to help you work with your healthcare provider, understand HIV treatment, and find an HIV specialist. Start with the “Living with HIV” area for tips on how to select and work with your doctor, then visit the “HIV Information Center” link to find an HIV specialist.
For information on HIV medications …
is a Web site founded and operated by people with HIV. If you have just been diagnosed with HIV, the site has a section that takes you step-by-step through the many things you’ll need to do like set up medical care, and learn about HIV/AIDS medications, drug interactions, and side effects as you start a drug regimen. If it’s personal stories or discussion forums you’re looking for, the site has blogs and message boards, too. You can read the message boards without registering, but you do need to register to post your own message.
The U.S. Food and Drug Administration (FDA)
offers a comprehensive discussion of approved therapies and treatments for HIV/AIDS, clinical trials and drug development, and new developments related to HIV or AIDS. To receive updates from the FDA about issues related to HIV and AIDS products, register on the e-mail list
available toward the middle of the page.
For questions about HIV/AIDS and pregnancy …
is based in the UK and offers sound advice regarding healthcare practices during pregnancy, postnatal care of a baby born to an HIV-positive mother, and some facts about HIV testing in pregnant women. You will have to contend with a few advertisements on this site, but they shouldn’t interfere with your experience in reading the material about pregnancy and HIV.
The March of Dimes
discusses HIV treatment during pregnancy, the effects of certain medications on babies, and which drugs could help improve the survival rate of babies with HIV. The content from this page might seem limited, but the available information is greater if you use the links provided. The content from the links teaches you about some of the medical procedures involved in pregnancies of HIV positive women, such as cesarean delivery, amniocentesis, and perinatal HIV. Click the National Perinatal HIV Consultation and Referral Service link
to access a free 24-hour advice hotline for HIV-infected pregnant women.
The Perinatal HIV Home Page
of the American College of Obstetricians and Gynecologists provides information about HIV and pregnancy. Use the links at the left of the page in order to access the Perinatal HIV content. The “Links to Related Sites” option is particularly useful and provides access to additional HIV/AIDS information.
To learn about the adoption of HIV positive children …
HIV Adoption or Adopt HIV
is run by a mother who adopted an HIV positive child. If you are willing to adopt a child who is HIV positive, this site can provide more information. Sign up for an adoption newsletter to receive information about HIV positive children who are waiting for adoption, or view lists of other children who have special needs other than HIV or AIDS. Not all of the sections of this site are complete, so keep checking back as more content is added.
offers a program called Chances by Choice, an international program dedicated to finding homes for overseas children who have HIV or AIDS. This organization works with both birth mothers and prospective adoptive parents. If you are looking to adopt, or if you want to place a child for adoption, check the “Contact Us” page to find contact information for those who can help. Under the “Our Programs” section, you can review the requirements of various adoption programs in the countries with which Adoption-Link works.
It can be difficult to talk to kids about HIV and AIDS. You might be asking yourself: How do I ... read more »
People living with HIV/AIDS still encounter discrimination today: in the workplace, in healthcare ... read more »
HIV/AIDS affects people in a multitude of ways; perhaps you’ve lost someone to the illness, ... read more »
If you have HIV or are concerned about how you can get HIV, the Internet can be a great place to ... read more »
HIV/AIDS is a global disease that affects millions of people and brings to light an array of ... read more »
There is a general agreement that AIDS education and awareness are some of the best ways to prevent ... read more »
Most Recent Guides